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#66888 - 05/31/06 05:26 PM Re: Question: Vitamins in PSK?
Simon Offline


Registered: 04/24/06
Posts: 398
Loc: Tennessee
I have everything worked out with balancing the meds -- I actually have one of the USA's top seizure-researchers as my doctor (have epilepsy). I carry warnings on my keychain, listing of meds and vitamins in wallet, even warning and meds on sticker on back of driver's license (Yes, I can legally drive now).I list medical requirements in my PSK too. I like Leigh's idea about a capsule/container on a dog-tag chain, I presently carry two day's worth in a pill box in my left front pocket, and that I don't like. I am also orderiing "red dog tags" with medical info on them from U.S. Calvary. Whenever I venture out off the pavement, I do carry two weeks worth of meds in the choke tube pouch.

As for worrying people about my vulnerabilities, I stay prepared so I don't. If in the eventuality I run out of meds in a situation, I guess they can put me down like a lame horse to ease their worries.. I have even looked into emergency beacons which are too expensive, but I'm never out of cell phone range anyhow and others are informed beforehand of where I am when out trapsing around in the Tennessee backwoods. I actually wear a custom-made crash helmet ($400) sometimes, but I haven't had a major episode in 4 1/2 years.

But bear in mind I have an open mind and am always open to more suggestions on how better to be prepared given my condition.
.
_________________________
Me, a vegetarian? My set of teeth came with canines.

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#66889 - 05/31/06 06:05 PM Re: Question: Vitamins in PSK?
Leigh_Ratcliffe Offline
Veteran

Registered: 03/31/06
Posts: 1355
Loc: United Kingdom.
I take it that you never go walkabout alone? I ask because a dear friend, who was also an epilepsy sufferer, died needlessly because she was alone. She had a fit and died of suffocation. Hence my concern.
_________________________
I don't do dumb & helpless.

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#66890 - 05/31/06 06:15 PM Re: Question: Vitamins in PSK?
Simon Offline


Registered: 04/24/06
Posts: 398
Loc: Tennessee
I was restricted for years until the right meds came along. What did Clint Eastwood say in Magnum Force? "A man has got to know his limitations." I fortunately do. I can venture alone, and I work doing hard manual labor everyday even though I have a B.S. degree in Basic and Applied Sciences. Therefore, you could actually refer to it as as a B.S. in B.S. with no foul-mouth insinuations intended.

_________________________
Me, a vegetarian? My set of teeth came with canines.

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#66891 - 05/31/06 06:49 PM Re: Question: Vitamins in PSK?
massacre Offline
Old Hand

Registered: 12/07/05
Posts: 781
Loc: Central Illinois
Interesting. I know a fellow who has recently had an electrode sewn up inside his chest with a wire that leads to his brain to help with the siezures. Still has them, I think. He's in Karate with me, so I know that a full life can be lived, but his family is always with him... Glad to hear you can get out and about and more importantly that you are thinking of survival should anything happen to you.
_________________________
Experience is a hard teacher because she gives the test first, the lesson afterwards.

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#66892 - 05/31/06 08:24 PM Re: Question: Vitamins in PSK?
Simon Offline


Registered: 04/24/06
Posts: 398
Loc: Tennessee
Good luck to your friend, massacre. Sounds like a Vagus nerve stimulator implanted. Wire wrapped around nerve in neck with implant coming from chest. Only works on roughly 50% of persons with epilepsy, then when they have a simple partial or such, they pass a magnet over it and it works about 30% of the time. Many have to have it removed, but meds worked for me in the first place instead of getting the implant.

Thanks for everyone's concerns, suggestions, and I am very grateful to you and glad to answer any more questions.
_________________________
Me, a vegetarian? My set of teeth came with canines.

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#66893 - 05/31/06 08:29 PM Re: Question: Vitamins in PSK?
massacre Offline
Old Hand

Registered: 12/07/05
Posts: 781
Loc: Central Illinois
I'm happy to reply to anyone with a sig like that... <img src="/images/graemlins/wink.gif" alt="" />
_________________________
Experience is a hard teacher because she gives the test first, the lesson afterwards.

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#66894 - 06/02/06 01:34 PM Re: Question: Vitamins in PSK?
krell75460 Offline
Journeyman

Registered: 05/07/06
Posts: 63
Loc: Mesquite Texas
Simon,
Understand your problem with Med's. Not as bad myself, but serious problem here. Severe Nerve damage to neck and lower back. Two days without med's and I start to go into Withdrawal's!
If anyone else here takes legal narcorics, and has been doing it for a while, will know, 2-3 days and you start to feel it! Look's like I REALLY do need to speak to the local VA Director!

Krell

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#66895 - 06/03/06 04:22 AM Re: Question: Vitamins in PSK?
ironraven Offline
Cranky Geek
Carpal Tunnel

Registered: 09/08/05
Posts: 4642
Loc: Vermont
There are a few transdermal patches out there for vitamins. It's restricted to water solubles, and you have all the wonderful concerns with DSMO (like don't go swimming in gasoline, don't let rattlers spit on you, all that weird stuff), but if they give you the dosage you need they might work for you. I can't image they are temp sensative or bulky.

http://www.supersavermeds.com/vitamins/patchinfo.html

If it's C or B-complex you need with your meds, these might do the trick.

If not, you can get short, plastic test tubes with locking caps that are about the same size a shotshell. I'm not sure if there are Rx vials out there that are the same size, but there are latching test tubes out there this size for things like cryogenics. (Your doc might have a source for them via labs.) If not, ranger bands along the lenth of the tube and over the cap. Label everything properly, slide it into a shotshell holder, and you can have up to 12 tubes in the old-style ALICE carrier. Or go Pancho Villa style with bandolers. <img src="/images/graemlins/grin.gif" alt="" /> (and I really hope that was really a joke on my part- if not, I'm sorry)
_________________________
-IronRaven

When a man dare not speak without malice for fear of giving insult, that is when truth starts to die. Truth is the truest freedom.

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#66896 - 06/03/06 05:15 AM Re: Question: Vitamins in PSK?
311 Offline
Enthusiast

Registered: 03/12/06
Posts: 285
Loc: NY USA
I tried the Duragesic derm for a while. I finally gave up on it because I could never get it to stay on. I even tried glueing it on with spirit gum. This stuff is supposed to be used for theatrical attachments. That worked better, but still not good enough. Even when on, it tended to bulge up in the middle, causing the membrane to partially lift, impairing the transfer of the med to the skin. I would like to try Mastisol (skin adhesive), but it is expensive.

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#66897 - 06/04/06 12:52 AM Re: Question: Vitamins in PSK?
ratbert42 Offline
Member

Registered: 05/31/06
Posts: 178
Loc: Florida
Pill fobs are probably too small to store many of those. Small ziploc bags might work if you rotate the pills instead of storing them for years at a time.

I use these pill pouches from Walgreens for my PSK meds. They're more like a tiny Ziploc Freezer bag than the usual flimsy small ziploc bags.

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