John,
I am very sorry to hear your news. It sounds to me like you have a good attitude to approaching this new challenge in your life. I am sure you will be just fine. My boss is going through a very similar situation, where the doctors have given him test after test and told him he had possible MS, only to change their minds again later. I'm sure he well understands your frustrations. All I can do is wish you the best of luck and the best outcome possible.
Greg